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Development of an Online Scenario-Based Tool to Enable Research Participation and Public Engagement in Cystic Fibrosis Newborn Screening: Mixed Methods Study

Development of an Online Scenario-Based Tool to Enable Research Participation and Public Engagement in Cystic Fibrosis Newborn Screening: Mixed Methods Study

One participant shared, “I love graphics. I love pictures, so I’m seeing this will give me more interest to go through it.” They found the pictures and diagrams to be an engaging and accessible way to summarize information, drawing attention to a comparison table graphic that helped them to understand the difference between “sensitive” and “specific” testing.

Louise Moody, Samantha Clarke, Matt Compton, Rachael Hughson-Gill, Felicity Boardman, Corinna Clark, Pru Holder, James R Bonham, Jane Chudleigh

J Particip Med 2025;17:e59686