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The Potential to Leverage Real-World Data for Pediatric Clinical Trials: A Proof-of-Concept Study
Each list was initially kept separate, and in each case, 3 clinicians and 2 patients were asked to independently review the data element inventory to mark the ones that they believed would be most relevant to be collected during clinical encounters or would be used for an RWD study. In practice, the experts largely agreed with each other and deprioritized very few data items. In retrospect, it is likely that this review step could have been avoided.
The inventories were then combined and deduplicated.
J Med Internet Res 2025;27:e72573
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